a little bit of good news

[FONT=”Microsoft Sans Serif”]dear rhonda and ryan– awesome news! i too got a huge boost of overall improvement with my 1st hit of cytoxan. i walked 2 hours around lake michigan the day after! know that this is predictive of a good outcome should ryan go through the program at northwestern… sophie and i return to chicago on the 24th as jim is getting hospitalized for his 17 day haul– my offer still stands, assuming there is no family that decides to fly in 😮
(we took advantage of a 1.5 week opportunity to fly home and lap of doggie saliva 😉 )

again, great news! keep me updated! i’m not on the forum very regularly– but you have my number.

best,
alice [/FONT]

Rhonda and Ryan,

I am so encouraged to hear this news!!!! This is answer to prayer!!!!! I will continue to keep you both and your family in my prayers. I can’t WAIT for your next update telling us Ryan no longer needs even his cane!!!! You both are so special and I know Ryan will make a great comeback. 🙂

Hugs and prayers,

Hi Rhonda and Ryan!
I’m so glad to hear such great news! My prayers are working for you.

Great news! 🙂

Bit by bit.

Sometimes recovery is a long process, but it begins with a single step.

Congratulations on having good news !!

Yea God!

Rhonda and Ryan, so happy to read your great news. I do pray you’ll continue to gain muscle control and strength. PT stinks, but it helps so much. Give Ryan my encouragement.

Gary

Thanks so much for posting such great news here on the forum. I assume you you will continue to keep us updated? I remember when I first walked at PT (after 2 1/2 years of NOT walking), how wonderful it felt, PT belt & all. I started with a walker for a few weeks, then tried the Canadian forearms crutches, & then two canes, then one cane; all in a matter of 2 months. I still use one cane when I go out alone, but just AFOs in the house. I expect Ryan to recover much better because I was 50 by then, his age in in his favor.

I know well how hard those first steps are and then the others! May they all add up to real achievement!
It’s not easy by any means and it all costs dearly on our bodies and our minds, but IF we don’t move? We won’t MOVE!
OK Ryan, it’s up to you as to when, WHERE do I send a pair of roller skates?
And, yes, Rhonda? You mite just need a pair too to keep up with him!
Hugs and hope and as long as I’m alive? It IS a promise! And I’ll be jealous all the way ’cause I Never COULD roller skate!

And once he gets going? Tell him He is due a pair of roller skates! My treat! Maybe a pair for you too, Rhonda, so you can keep up with him!
Hugs and heart and hope sooner than you thought!
I know it’s not ‘easy’ to re-learn how to walk, then learn to walk ‘properly’ to boot! The Process Hurts, but it can work if done right. Keep faith in the work and the effort, make your minds open to ‘differences’. They are the subtle signs of things good happening.
I’d do a ‘jig’? But I’d likely fall over doing it! So I won’t but I hope you understand the spirit offered!

Hi Rhonda,
I posted well wishes on another thread that you were on, but why not post twice! Great news!

Rhonda,

Wonderful news!

Slow but steady step by step improvement.

Best wishes and prayers.

Shirley

Wow!! That is excellent news!! I’m very excited for you guys as there is no greater experience than being able to see improvement!! Reading this post has literally made my day.

Take care,

Tina

Great news you two!! Will continue to keep praying for you both. Big hugs
to both of you. God does work in mysterious ways.
Ms. Judy

I’m crying right now with tears of joy! This is exactly what we all have been praying/wishing/thinking/supporting of for several months now. In a few weeks it’ll be warm enough to walk long the shores of Lake Michigan. I’ll certainly look towards your area with glowing smiles, for both of us!!

Keep the post coming and I’ll update mine for everyone’s benefit.

[FONT=”Microsoft Sans Serif”]hang in there guys– i have all my positive energy heading your way:cool:
best,
alice[/FONT]

[FONT=”Microsoft Sans Serif”]sounds good, would love to meet you both too.[/FONT]

Hi Rhonda and Ryan,
I am so happy for you both!!!! This is such great news!
Thanks for sharing. It gives us all hope! Keep up the great
work and keep posting. Congratulations!!!
Best wishes.
Sandila 🙂

Rhonda,
That is so very interesting, as I was always told that Lyrica was basically the same as Neurontin, just that one had to take less pills as it was much more concentrated. When I first went on Neurontin nearly 8 years ago, it was a very pricey drug, even the co-pay was high. Then it went generic 4-5 years ago (gabapentin) & the drug company was all ready to roll out Lyrica as a much better alternative. Those on the forum who had followed all of this said that they were basically the same drug. I hadn’t heard from anyone who had seen much of a difference between the two, until Ryan that is…

Rhonda,

Lyrica worded wonders for me for awhile … then it wasn’t as effective and my night muscle siezures started up again. But it really did help for a good amount of time. The only “side effect” I had from the Lyrica was rapid weight gain. I told my neuro he needed to staple my mouth shut so I wouldn’t be able to eat so much and he told me it wouldn’t matter, I would just rip the staples out to get the food in!!! 😮 So my only caution would be to keep lots of healthy snacks around so Ryan can eat without gaining weight … :rolleyes:

I’m so glad he’s found some relief – I never knew anything could hurt so much until I experienced nerve pain. How is his PT going? Is he still improving? How does he feel from the cytoxin?

You both and your family remain in my prayers,

I did read some reviews this morning on Lyrica & many did caution about rapid weight gain. As someone who gained 80# on steroids in 21 months (which was permanent weight gain, not just the “moom face”), be real careful about this side effect. Not fun to deal with once you get better…

i think those zaps were nerve healing?. I went thru similiar situation.. Sounds like he is on the road to recovery…