ken,

i am of italian decent. the story passed down to us was that many generations ago, when we lived in italy, word was passed not to marry into our family cuz we had ‘nerve’ disease. a 1st cousin of mine [died of als] & a nephew had/has an auto immune disorder. genetic predispositon is alive & well. take care. be well.

gene gbs 8-99
in numbers there is strength

I was just discussing this same thing with my family..
I have an uncle who dies of ALS. An aunt with MS and my mother has GBS. This is all on my mothers side..
Scary stuff:eek:

very interesting.. My Mother has Sclerodermia…

Simon.

Interesting. I have a huge family, w/ no neurological history. However, there’s a picture of my great grandmother and she is in a wheelchair. No one knows what was wrong w/her that I know of.

i noticed parkinson’s was mentioned in a previous reply…

my father was diagnosed with parkinson’s at age 41. i got GBS at 30 (although i am fully recovered after 4 months). is parkinson’s thought to be related to this hereditary susceptibility?

thanx, lisa

This link will probably get removed but here it is anyway, here in the US we have a group called the Multiple Autoimmune Disease Genetics Consortium (Link deleted by Administration)
. I am a part of a large study they are doing to see the relationship of Autoimmune Diseases running in families. Give their site a look, google the group name if it gets removed, their site has loads of information.

Jerimy

Here is the link to the newsletter with the findings from the MAGDC study that I was a participant in.

(Link deleted by Administration)

the findings are published here:

(Link deleted by Administration)

Hopefully these wont get removed seeing how important the information is to each of us.

Jerimy

(Link deleted by Administration)

You are getting GBS Discussion Boards paranoid, Jer 😉 :p

Your bud,
Per

Yeah I am thinking I need to get my meds upped :p

[quote=kenspdn]Anyone know of similar apparently genetic tendency to auto-immune disorders?:confused:[/quote]

Apparently there is a suspected predisposition of this type, and some research is going on. Take a look at:

(link deleted by administration)

In my own case, my father had ulcerative colitis but I don’t know of any other auto-immune conditions in our family besides my CIDP.

* My father died, likely (no dx) with ALS. Had all the necessary symptoms. Mind still very sharp.
* My mother died of a brain cancer, ( and 2 sisters not dead yet) but that’s from a different gene defect: MEN 2a.
* My grandfather had severe Parkinson’s.
* My nephew died of brain cancer.
* Another nephew has MS
* My sister has FMS and multiple chemical allergies.
* My other sister has Post Polio Syndrome (Wheel chair)
* My daughter had post measles encephalitis
* My grandson has Asperger’s (Hi functinal Autism)
* My sons, my grandsons, I, many cousins, have (probably,) mild Tourettes.
* Many of us (I included) cannot recognize faces until we feel the personality.
* My aunt had severe Tourettes.
* I have been dx with FMS, CPS, CIDP GERD, IBS. (And, not related I have severe burn damage in my throat, nose, sinuses, resulted from radiation and chemo for sinus cancer. I greatly miss some of those nice body part that are gone.)

*******WE GET ALONG–It not easy but we manage.

Autoimmune diseases also run through my family, I have several in addition to CIDP. Here is a site for a group that is doing a major study on autoimmunity and heredity which I am a part of (link deleted by administration)

Jerimy

Here is the link to their newest newsletter, it also mentions the study I am a part of: (link deleted by administration)

Jerimy

Hello

I have CIDP ….my father died 1982 and he had ALS (motor neuro desease)
my uncle had Multible sclerosis , he was my father’s brother , also died .