2nd chance for Make A Wish denied!

It’s confirmed! She does NOT qualify for a wish because she’s not in a relapse now. If the IVIG stops working for her then she’ll qualify again. 1 year ago she would have qualified but we waited to refer her until she was more stable.

I’m just devastated. It’s just not fair! There are other kids (and please no offense to their parents) that were never as bad as Emily & didn’t need anywhere near the amount of IVIG that she did who have been granted wishes.

And to top if off Emily’s school is doing a fundraiser for Make A Wish and she keeps asking me if she’s going to get a wish too.

UGH! Life…

Kelly

Kelly,

I am so sorry things haven’t worked out for Emily. Sometimes rules suck, don’t they? Too bad they can’t see any gray areas. Maybe Emily’s school should donate the money to Emily and her wish instead of giving it to the Make A Wish foundation…..food for thought.

Take care and keep trying.

Well I called the other wish organization & they are sending paperwork to Emily’s dr. We’ll see what happens but I’m not even hopeful about it.

I had a talk with Emily last night & told her that she might not get a wish because there are so many other kids that need wishes too but they are very sick. Luckily I have a very kind & loving child who can understand that. She would rather that the sick kids get to go before her…of course she still REALLY wants to go.

I told her that next year (hopefully) we will take her on our own. I told her that we might have to camp next to Disney (instead of staying at a hotel to cut costs) but that I promise she will get to go. She asked if she could still stay in Cinderella’s castle but I told her I didn’t think so because there are a lot of kids that want to stay there too, but that it wouldn’t matter where we stayed as long as we could go as a family & have fun.

Even if I have to take every penny from our tax money next year I’m getting her there! Does anyone know if we have to deduct this economic stimulus plan money from next years taxes like we did before? I hope not because that will make it a little rough to get to Disney.

Kelly

PS, Emily sang (A SOLO!) at her school’s variety show last night. She did GREAT!

Thanks Trish.

It looks like they are only in Alabama though. I’m in MI.

Kelly

Julie – We already did a fundraiser to help pay for the mold testing at our apartment. I felt like such a jerk for doing that, I don’t think I could do it again. I felt HORRIBLE asking people to donate. I’ve always done things on my own.

Let me tell you, if we ever win a big jackpot I am going to start my own wish organization. I’m going to send families, whether it’s sick kids or sick mom or dad’s, to anyplace they want to go.

How’s your IVIG going lately? We’re changing Emily’s schedule again. Now she’s going to get it every 2 weeks then every 3 weeks then every 2 weeks again. Then at the end of June, if all goes as planned, she’ll go just every 3 weeks. We’re hoping that by the time school starts again we can have her at once a month.