17 month old diagnosed

Very nice to meet you, glad to hear that he is recovering.

Jerimy

Hi jbeatty and Tucker, Welcome to The Family!:) How unfortunate Tucker had to go through this nightmare. I’m glad He is doing Well. Please give Him a Big Hug for me.:D

Welcome jbeatty and Tucker! The best thing about him getting this at such an early age is that he will not remember how difficult it was. He may have some residuals like the fatigue after a day of playing hard, but he will not recognize it as anything. He will play the next day as much as he can and then crawl up into your arms for a hug and watch cartoons. Kids get over things so well. I would not even mention it to him but make sure it is put on all his medical records. When you list allergies I would also put right in that list tetnus, flu and pneumonia and the other boosters you mentioned. As research goes on that list might be able to be shortened. It is better to list it and have a discussion about them with your Doctors each time.

The chances of any of us getting it again is very slim and so slim that I would not let that add stress to your life. Stress can be more damaging to our systems than the chance of us getting this again. But like you said you are concerned and should be about all the shots that we get in a life time. But as you go along you will become more educated and form your own opinion. As Tucker gets better and plays harder you might see a few times he has a relapse from doing too much. We all do. He might not be able to go swimming at the beach and play hockey all evening. Then again he might be able to do more than we ever could at that age! You just have to be patient and wait and see. As far as how to raise him? Don’t treat him different! Make sure you tell him you love him every day and give him hugs each time he darts past you so he does not have to take a bath or go to bed when you say! Life with a child goes too fast and then they are 32 year old! 😮 Enjoy the holidays like they were his first! Take photos, watch his eyes light up as he takes everything in all at once. Notice how fast they talk without taking a breath because they are so happy! You have brought him a long way and now it is your turn to take that deep breath too!

I would talk to his Neurologist about any immunizations and vaccinations prior to him receiving any just to be safe.

Here is a good guide from the fda:

[url]http://www.fda.gov/consumer/updates/kidsvaccines073107.html[/url]

Jerimy

Hi J!

There’s a liaison in Iowa whose little kid had GBS as a toddler. The liaison and her husband are both physical therapists, so they recognized the symptoms and got him the help he needed. Her name is Kari, and her number is: 515-964-7386. I bet she’d be able to help you a great deal!

Good luck!

Shannon

Hi!
I understand your indecision. My son is 10. I will not be getting him any other immunizations ever. If he were a baby, I would have to pick and choose. For instance mmr, measels, mumps, reubella. I would for sure ask that they be given spread apart if I did decide to get them. First I would investigate the illness itself. What is the big deal about chicken pox, we had them. I feel some of these immunizations are for modern day conveience so that we don’t have to stay up at night or miss work when our children are home. People died of measels before because we did not have tylenol or other drugs. I was so surprised to learn that “scarletina” actually is scarlet fever, we had that, it came with a sore throat followeed by high fever. We took tylenol. In the olden dies, people would die. You get the point, some immunizations are mereley convenience.

Another thing to consider, since most children do get immunized, your child would be protected by herd protection. Now if everyone starts refusing immunizations, that is another story. FORGET ABOUT THE FLU SHOT!!!!!!! or pneumonia. There are drugs to take if you get it. There are even doctors on this site who have gbs from flu/pneumonia shots.

Being that your child is young, communication is difficult. Watch vigilantly to make sure weakness does not come back. Make sure he is making his milestones in the fine motor skills as well as large. Your vigilance is your best defense.

If you want to talk, you can pm me your phone # and I will call you!
Best wishes,
Dawn Kevies mom

WOW!!!
I had tons of spelling errors! But I did think of one more thing. If you are planning to get any immunizations, make sure they are the ones WITHOUT LEAD! Also, if your son had ivig, there is a certain amount of time you have to wait AFTER treatment before you can have an immunization in order to benefit from it. Well, I guess that was two more things!!
Dawn:p

hi jbeatty,

no one knows when his fatigue will lighten, but it will. it is best to allow him to sleep/rest as much as he wants to. i slept 20 hours/day at the beginning. take care. be well.

gene gbs 8-99
in numbers there is strength