Your story sounds very typical…

Anonymous
July 29, 2010 at 12:08 am

Reading your story is very similar to mine & so many others here on this web-site, only I was much, much worse for over a 2 1/2 year period of time. I deteriorated in a matter of 6-8 weeks from numbness of the hands & feet, to totally unable to walk & virtually no use of my hands or my legs. Many on here have been paralyzed almost totally & remained that way, even after treatment with IVIG, plasmaphersis, or solumedrol. Others get their first IVIG & are almost totally functional again. I was inpatient at Mayo In Rochester, MN & originally dx with GBS, 6 weeks later it was changed to CIDP.

If I were you I would forget the lawsuit, as CIDP is extremely difficult to dx, besides it is considered an “orphan disease,” or very rare. Doctors win over 80% of lawsuits anyways, something most people don’t realize. I would instead expend your energy on fighting this illness, trust me, you will need all the energy you have just for that. Fatigue is one of the biggest complaints of CIDP. I am over 8 years out & continue to fight the fatigue daily, as well as many residuals. Good luck…