Yes to IVIG

February 22, 2007 at 11:24 am

The spinal tap is what confirmed my diagnosis of CIDP in July of 2005. I take IVIG every 60 days. Don’t know what I would do without it. My neuro added steroids to the IVIG for 18 months. I started at 20 mgs. every other day and worked my way up to 60 mgs. every other. I stayed at that rate for a year and then very slowly tapered off. There are a lot of side effects related to steroids and I think I had most of them but not all! We are now about to try Cellcept. It has much fewer side effects but costs a lot more. I’m sorry you’ve been diagnosed but you can still have a good life.:D Every day counts! Keep us informed on your diagnosis.