Yep – can identify!

November 17, 2010 at 7:02 pm


Hard to tell if it is CIDP related … the 1st year after I was diagnosed, I had that problem all the time. The pain in my hands was off the charts and I felt like my arms had 50 times the normal amount of gravity pulling them down. I couldn’t grocery shop – even a little – without crying from the effort of pushing the cart. And if I tried to use the electric cart, well, you have to grip the handles to make them go and so was no help to me at all. Then it got better.

This 2nd year, I believe gravity is working as I now have similar condition in my feet/legs – sigh – what’s a girl to do?

Well, I decided to try for the stem cell transplant program at Northwestern. My application’s been reviewed and my consulatation with Dr. Burt is mid-Jan. I really don’t see any other alternative for a reasonably active lifestyle. There have been several members here and on the facebook forum that have received SCT with great success, so woohoo! Hopefully, I will get accepted!