I watched over the weekend and was a little discouraged that so many had read my post with no replies. Maybe I did not explain it well. Anyway, I’d like to join a group, or form one if necessary, that will go out and make contact with medical professionals and raise awareness. I saw 5 doctors over 3 weeks before I was diagnosed and treated. It wasn’t until I fell on the floor and stopped breathing that they took me seriously. And even then I was in the hospital for 3 days before they called a neuro and started PP.
If there is no group doing something, it will be a big job, but I’m ready to start. Now that we have doubled the membership is three days let’s keep looking for more GBSers to join us.
Imagine your first feeling that something was wrong and you called the doctors office, or maybe stopped in. You describe your symptoms and they say “There were some GBS people here a few days ago and they described something like that. It could be a lot of things, but we will check you for GBS right NOW!”
Please help Andy and I get this thing going. Just a reply is all that is needed now.
PS: Where are you Andy? I’m in SE Michigan.