February 5, 2011 at 9:37 pm

Yes, that is the Parkinson drug one doctor put me on, then when I changed doctors, the new one thru a fit that I was taking it. I had to stop taking it then, but after being on it for a few months, it was not doing anything anyway.
It was exactly 5 years to the day-Valentine’s Day, when my G.B.S began-when my teen daughter was diagnosed with a rare type of cancer.During her illness, is when I discovered Gabapentin, and was on it for a few years, but I did not like how drugged I always was, so Gabapentin was one of the drugs I was taken off of.
My daughter was so brave, she fought her cancer very hard, for 19 months. She took her final breath, I could feel it on my cheek, on September 11, 2002. I miss her so very much. I will always wonder why it was my life that was spared, and not her’s. Parents should never have to bury their children.


August 28, 2008 at 12:51 am

Yes, it is Dr. Levin. He spent over 2 hours with us. He seemed to know what he wanted to test for. He felt very sure that he did not have cidp mainly he said that the emg did not prove it and because it was mostly axon he is thinking that it is something that is going directly to the the axnol(sp?) . He mentioned the bone marrow and if there is no mylin sheth left how can you know for sure it is cidp.

To Dawn: Dr. Thomas I believe did mention a onion bulb but said there was none. I do not know what onion bulb is about. Dr. Levin at Cleveland Clinic is having his pathologist check the biopsy slide. Dr. Thomas said trust me you will not need the emg results or the biopsy but I insisted.

Hope: What is multiple myloma