April 15, 2007 at 11:00 am

hi tim. i’m so sorry you feel this way. a lot of us have lost friends and even family members who have distanced themselves from us because “we dion’t look sick”. they don’t want to hear about the constant overwhelming fatigue, pain, discomfort and depression because we can’t do what we used to do. that’s what we’re here for. we will NEVER turn our backs on you, and we REALLY do know what you’re feeling inside.
i’m 5 1/2 years post gbs and i lost a friend of over 35 years. she saw me during my chemo. and i.v.i.g. and couldn’t deal with it i guess. i try to say i don’t need friends like that, but it still hurts. especially when it was a life long friend. please feel free to vent, whine, scream anytime you want. please stay well. you’re in my prayers.
with much love,