March 29, 2010 at 12:31 pm

Thank you for all of your responses. It has been a tough couple of weeks.
I visited with my pain mgt doctor. He wants to get out of the med side of pain management and deal strictly with shot type therapy. But he did renew me for 10 mg of hydrocodone every eight hours.

So, I went to my neuro and I could hardly walk at the time due to pain weakness in my feet and legs. Also I feel weakness in my neck shoulder area where it is difficult for me to hold myself upright.
She offered to prescribe me a wheel chair. (It wouldnt work for me at this point because of my lifestyle and job as a teacher) I am now taking 30 mg prednisone every other day. She also asked me if I want to stop working. She STRONGLY advises against it because of having to deal with Medicaid. She called my pain dr while I was there and told them to continue with the scripts.

For now the prednisone is helping but I know it is not a permanent solution. We might move my IVIG to every two weeks. I am just angry that I am having to beg for pain relief. I have abided by all of the rules set forth by my pain dr, never asked for anything outrageous, or failed a urine screen. If this doesn’t work though I going to ask for something stronger even if it means having to go in once a month (it would be worth it). I am over having to feel like this.

Do you think it would be out of line to ask for handicap parking tag? I am on the fence about this but I am overwhelmed by the walk in the parking lot let alone the grocery store.



October 8, 2008 at 8:42 pm

Whew! That’s a high price to pay for just one IVIG and the insurance companies are getting to be a joke. I do agree with you about the Healthcare System. Makes you think that if your rich we take you in and get our money but if your poor ohh well!
The prices are so high. You are right about 1 pill charging you outragious numbers. I have not recieved my hospital bill yet and am waiting to choke on it! LOL!

Gosh my back surgery ended up costing me a whopper too. I only stayed in the hospital not even 24 hours and they charged me $32,000.00 on that surgery for a Lumbar Laminectomy. Then sent me home to suffer! But I wonder why this type of treatment is so darn high!


July 26, 2008 at 2:08 am

The Bar is closed for the night. Swept the peanut shells off the floor, stacked chairs on tables, washed bar and glasses. Jim and Norb, help me with close up, Please. Don’t forget your buddas. What a great party. Jim, your voice sounded fine. Good night all.


February 10, 2008 at 2:02 am

[FONT=”Comic Sans MS”][SIZE=”2″]Suzanne,
So glad you dodged the MS bullet!
I had never heard of POTS, now I’m gonna have to go research it, keep posting so we know how it goes, okay?
Come over to the[SIZE=”3″][B] Tavern[/B][/SIZE] and I’ll buy you a drink.


January 31, 2008 at 1:23 pm

[FONT=”Comic Sans MS”][SIZE=”2″]Glad to see the Tavern is still open, slept off my margaritas in the parking lot.
I gotta tell ya, dancing naked on the tabletops ain’t as easy as it used to be, for one thing I can’t get up there, for another, it’s just not seemly for a person of my age when all the formerly perky bits have gone all saggy, big sigh…
Anyway here’s a big hug [SIZE=”4″][B]( )[/B][/SIZE] for Sherry who’s not feeling well, now can I make you a Margarita? straight up or blended with or without salt?
How about a round of burgers and fries? I’m still buying.[/SIZE][/FONT]


February 14, 2007 at 11:39 am

I sure am glad I didn’t give the wrong advice. I’m still a baby in the GBS world but I know where I would be if it was my kid but knowing the way GBS has been to me I can say that. I asked all 4 of my daughters last night the same question, and all 4 concoured. But then again they watched their dad in the CCU for 4 weeks hallucinating and on a vent. Then they watched me cry because I was scared I would never walk or even move again. Experiance VS. Panic I guess.