Where do I begin?

May 2, 2010 at 4:53 pm


The more I read about the stories of GBS survivors, the more I realize how unique each of our stories is. I can’t imagine having to go through this ordeal by myself. I believe that along with faith, you must possess a strong tenacity for survival. I suppose in the final analysis, we each had a time when we were at a crossroads…..do I fight this syndrome or do I simply cave to its whims and let go? It is a deeply personal decision. Thankfully, you have chosen to fight this “monster”, (on your own) and become the best that you can be. People need to be inspired by stories like yours to be given hope that tomorrow can be a better day.

Life is changed forever for most GBS sufferers…you have the statistics to prove that. But one thing that is not measureable is the resilience of our human spirit and the strength in our heart to go another day. In the toughest times I always clung deeply to the idea that if I could hang on one more day, things would be better. I am glad that you have chosen to move forward against the many obstacles you are facing. I think you will be rewarded for staying the course and wish you all the best.

Okay………on the lighter side of things,…..I’ll put you down on the “no foot rubs” to be given list. Take care and may this week be filled with many good things for you.

Where do I begin

December 23, 2006 at 3:57 pm

🙁 I went to the neuro and asked first of all if they had had experience with post GBS. She gave me a smile like I was a 48 yr old child and the nightmare began. To sum it up she asked alot of questions about the symptoms and then gave me the typical check on reflexes and strength, then told me I was depressed and should take anti depressants for the rest of my life or untill I get better……..(this is the short version). I told her there was no point checking my strength as GBS has effected my stamina, she noticed my reflexes aren’t so good in my left side, foot and elbow but said nothing. I told her I was unhappy and in pain and frustrated but as my life is full and rewarding and that depression was was not the answer. She said try the drugs she thought I would see an improvment over the next 4 to 6 months.
Any more advise from the board is much appreciated as I have now come to a stand still.
Thanks for all your advice so far and have a great Xmas and happy New Year. I’m going to light the BBQ and have a beer