When did it all start?

January 20, 2008 at 8:34 am

Ken’s question about when it all started, is hard to answer definitivly. As early as 1995 I can remember a tingling sensation in my legs, I noted it in a diary I kept at the time, but so much else -and worse, especially mentally -was going on at the time, so I didn’t see any doctor about it. The pain, that eventually turned out to be nerve pain, slowly, but surely grew worse and worse, not in a “linear” fasion, but when it hit, it became more and more unbearable and more and more frequently so. When I couldn’t stand it anymore, in the fall of 2000, I went to my GP and told him that I suffered from this terrible and unexplicative pain, mostly in my legs and feet, but sometimes also all over my body, exept in the front of my torso. The answer I got was something I’ll never forget and never forgive him, for that matter: “There is so much pain that we (you) just have to live with.” So I had to tell him that he had to send me to a neurologist. He did that – and the rest is history, as they say.