Freezer here from New Zealand.I am 3 years and 9 months on from onset.
Finally got home after hospital and then 1 and half years in a rest Home(nowhere else for me to go)At 52 years old-I wanted out of there.Sadly one of the few able to leave whilst still in the land of the living (if you get my drift)
I am totally paralysed still – use my head to operate things and soon to take stock of electric wheelchair- this will allow me to be more independent.
Life is infinitely better at home- I have been fortunate enough to get to live in a brand new property designed for people with disabilities-it is a new concept being tried out here. One house -shared kitchen but separate units on either side of the kitchen.I manage well as I live here with my wife.
It is owned by Ryder Cheshire Foundation.
I still manage to enjoy life,I have had to adapt-use talking books ,listen to more music,operate computer with my head etc.No point in being down as this is how I am.
However I always have hope.