what to tell

Laurie,

I tell my daughter that this is going to help her walk and that it is medicine in the tube. She will repeat it over and over. It becomes a way of life and I do not say that lightly. I never thought that you could get used to this. Children are so much more versatile that we think. Tell your son that this will help him run and help his feet to not hurt or itch and will help his calves. It also helps my daughter to see the other children at the infusion clinic. I am a social worker by trade and I guess I like the idea of my daughter being accepting of others as some of the other children at the infusions center are in wheelchairs or use walkers. I really believe that she is going to do something big when she grows up. Who knows maybe she will come up with a CURE for cidp.