what happened to me

November 15, 2008 at 8:47 pm

hey there welcome,
I am very sorry to hear that your daughter has gotten GBS. I had GBS in march and spent in a month in the hospital ICU. I turned 18 in the hospital. I don’t know the age of your daughter but it sucks either way. When I got out of the hospital I had Occupational therapy, Physical therapy, both 3x a week. I was also diagnosed with PTSD so I went to a psychologist. I think that is probably something you might want to look into. There is alot of stigma about psych’s but it really helped me. Also if there is a goal, or something to look ofrward too, for me it was going to my senior prom, it really helped me get better. Positive reienforcement is also a great tool. I felt so acomplished, to do anything, pick up a fork, hold a cup, and it helped me emotionally to know that my parents were proud of me too. expect baby steps but don’t discourage anything, i went from being bedridden to walking with a cane in a week, my PT/OT people thought i was nuts. The therapy, and medications are daunting, but if there is encouragment and love then things are bareable.
I hope this helps. If your daughter needs someone to talk to my email address is [email]britaneystorms@yahoo.com[/email] I know I would have been a little less down sometimes if i had someone who went through what I went through.

As a final note, it’s a long process that seems like it will never get better, but things do with time. I got better with time, and now just a few months later I am going to college and have only the scars left over as a reminder. I hope this helps and that she gets better soon.

Best hopes,