Welcome. I hope you like the support as much as we have. My daughter is 3 with cidp. Her neurologist told us the other day at her appt. that 50% of adults with cidp go into remission. I would take this with a grain of salt but the man has done research on cidp and has written papers and a book on the subject! He also believes in weekly ivig until you come back to baseline and then he believes in going to everyother week and so on. He is not a big fan of prednisone and uses it only if ivig does not do the trick. Best wishes at the Mayo. We thought about doing that, too. Please let us know what you find out.

Welcome to the site! I just hate to see another member joining the group suffering from a bad illness! My prayers are with you and I hope you recover soon! Wishing you my best!
Linda h

Hello Vic, I’m 43 and like you deal with alot people looking at me and thinking I’m fine health wise. That is until I start to walk, been having a problem with my balance lately, lol. You’ll not only find alot of information here but alot of support. Everyone is great, we all need someone to lean on sometimes.
Hey Dick S, I liked the quote. I printed it out and put it on the fridge, as I’m doing steriods now I spend alot of time there!