Welcome, Smiley!

January 25, 2008 at 11:43 pm

Hello and welcome!

I’m sorry to hear of your tough struggle these past 7 months! You have come to the right place for support. It sounds as if the people around you want to be encouraging by pointing out how far you’ve come (that’s normal) but they can’t feel what you feel. As I tell my family, from the neck up I’m the same old me but from the neck down, I don’t know who’s body this is. I just ask them to bear with me as I try to learn to live with this new and changing body. I’m glad to hear the feeding tube is gone, one less worry for you.

As I understand it, steroid therapy is not indicated for GBS. And yes, people get more than one round of IVIG. I have not had this therapy yet but many others on this forum have and they will weigh in on this topic…give them a day or so. I’m only 7 weeks out from my diagnosis and still learning as I go.

I just wanted to say Hang in There! You’re not alone and there IS hope!