Welcome Jorge

🙂 Hi Jorge,

My birthday will be this Friday, the 12th of January, and I was ten years old when I came down with GBS (yes, I will be 46 years young). I didn’t have many of the improved treatments that are now available to many living with GBS, and I’m not all that sure that I was diagnosed early enough to get the proper intervention/s. The first diagnosis was polio, so go figure. I’m writing a third book to talk about and tell others of my GBS experience and while living in foster care too (that’s right, I was living in foster homes when I got sick). I tell you (and others) this not to say that my experience was worse than yours, just different.

Today, I still have to live with walking around in my AFO’s (a type of plastic brace to assist with heel-to-toe movement because of the absence of muscles in my calves, ankles and toes). When I’m in the braces, I’m “Superman” and very few even know that I have to rely on the braces daily. When I’m not in my braces, I’m simply “Clark Kent.” I go about my life working every day, driving my car, riding bicycles, dancing, laughing and crying (when the need arises) and writing (again, a [I]third[/I] book).

Recovery will vary as others have stated. Work hard but not too hard at PT and OT. Take your meds as prescribed.

Finally. Laugh and cry as the needs arise. Your emotional state is as important as the physical state.

Come here and “talk” it out with others and we will graciously assist you with your recovery.

One day at a time is all that will be asked/demanded of you while on this new journey.

Take care.

Blessings,

Alex