Welcome Back.
Welcome back Jeff, I haven’t posted with you since diag+2months for me.
We’ll I did go back to work and though I walked very slowing around the office I survived. The next month after going back I was advised to go back to the gym and practise Tai Chi. That was challenging given all the balance required. Now 17 months post diag. I’m doing all I did before, I still have tingling in the feet which surges and recedes based on rest.
It’s nice to her of your progress, walking 20 minutes.
Talk to you later,
Mark, still in New York.
Welcome back!!!
Hey Jeff,
Glad to see you’re back and feeling somewhat better. I’m sorry you weren’t away on a nice vacation. ;).
Take care and be well,
Tina
Welcome Back!
:rolleyes: I’ve been a crank this past week, and it had little to do with gbs/cidp.. I had to watch the Minnesota Twins drop 3 games to the Yankees….:D I hope the Mayo can help you get on track.. Obviously, something is going on, and hope you don’t become a financial wreck trying to find out.. Hope things start going good for you…:)
welcome back
Welcome back. All are glad you are back and that YOU were not hurt–only the computer, tough as that was. Also that life has been stable–that is indeed nice.
WithHope
Welcome back…
Andrew,
It is nice to see another post from you & also to learn that you have gained a lot of insight by reading many of our posts. I have/had a very severe case of CIDP which came on rather suddenly. One weekend I was snowmobiling & a few weeks later I was totally unable to walk & had no trunk muscles, no arm strength, & almost no use of my hands. When 8 months of IVIG, PP, & steroids failed to arrest my CIDP I was finally put on 8 months of chemotherapy. I mention this as I just remebered that after my cytoxan infusions, my feet & lower legs would feel like “frozen turkeys.” It was really scary to me as I thought that the infusions were making me even worse.
That was back in March of 2002 that I came down with CIDP; by the summer of 2004 I had enough back to begin walking again. By that fall I was walking with AFOs & a cane. Not much better today, but a lot better than I first was!
Pam
Welcome back…
Emily,
It is so wonderful to see you posting again, & I am so glad that you were able to find what works best for you in terms of treatments. I always did wonder why IVIG had to be stopped when it had worked for you in the beginning of your illness. I know there was a reason at the time, but I can’t seem to remember it now. But since IVIG is working so well for you now, that must mean that you have the relapsing/remitting form of CIDP which I think is good. That is why you were able to get back so much function.
Wow, a normal gate, how unbelievable, I am happy just to be upright. CONGRATS on your permit, I used to teach drivers ed & always thought that the permit test was harder than the actual driving test. This last time when I had to retest, they didn’t even seem to notice that I drove with both feet! That will be your next step, & your ticket to more freedom. In the meantime, I would strongly recommend water aerobics, or some sort of working out at a gym. I go twice a week & feel it is so good for range of motion in all of my body parts. I have also met a lot of nice women as a bonus.
Look to your passions to get your life back. I have finally been able to take up my love of reading again. My husband & I have also been doing a lot of snowmobiling again since we finally got snow here in MN. I can’t wait for summer to spend lots of time at our lake cabin & cruise in the boat. My point is that life will never be what it once was, or could have been, but it can still be very very good.
Blessings, Pam
Welcome back
Thanks for sharing, Gene. I shall remember your advise for short trip instead of long one.
Please do post pictures. We are keen to see it.
welcome back
Welcome back Gene.We have been thinking about a cruise, and now that I have all this time on my hands….. any suggestions?:)
Welcome Back…
Julia,
It is so good to see so many finding their way back to the forum. Wow, 45 minutes on a treadmil, you must be doing great! I can only dream about doing something like that. Keep up the great health!
Pam
Welcome Back
It’s so good to see our member’s list growing now, it’s at 200 plus. Hugs for everyone.
Welcome back
Hey Cheryl, missed you. Glad you finally made it to the new/old forum. People were asking about you. That trip to the hospital sounds scary. Hope you are doing OK.
Just curious. Why did you pick such a long name this time?
Welcome back
Hi everyone, it is very nice to be back. I used to check up daily about this site but in vain. Yesterday I got this and not only glad but gained some energy again to live with ‘Family’
Well said Jan. I do agree with you.
Hope everybody is well during the missing period.
Sandeep
Welcome Back
Hi family and friends,
BOY, I’m going to have to re-learn how to use this. I already noticed the time that I have showing is wrong. I put in a profile, but I have to figure out what else I need to do.
I couldn’t get my old status back, even though I had my username and password. I had to register as a new member, but that’s okay.
We’ll just have to send out word to everyone and anybody we know that the US forum is back.
WELCOME BACK EVERYONE,
from my heart,
Liz