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I am just wondering if you don’t have the insurance coverage and your doctor denied you the IVIG’s because of the cost, it is very expensive. I was on IVIG’s every other week, so to me, if it’s helping you, every three weeks isn’t to much. Sometimes the IVIG’s just control the progression and you don’t always feel stronger and better, so what you and the doctor are looking for is feeling the same and never feeling worse. When you don’t feel worse, the IVIG’s are working.
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I just wish there was something I could say that would make the loss of your wife a little easier. I haven’t been there & can’t possibly imagine losing my husband of 33 years (together over 35.) But when I do read your posts you remind me of why I daily battle the disability CIDP left me with, as well as the pain & fatigue I will always have.
It is because I know that my husband, children, grandson, mother, siblings, & friends still value me & want me here with them. For reminding me of that, my dear friend, I thank you from the bottom of my heart. If nothing else you help those of us who may not wan to face another terrible day of why we do go on…