Tim, I forgot to thank you for your reply.
Victoria I just checked out the FM you referred me to. I am going to call my neuro Mon and ask her if I could have FM, a residual of GBS, which I’m not sure she know that much about Thanks. It makes me feel better just know that it may be something I’ll have to live with, like the rest of you, and noit have to take all the medication she wants me to take.
I posted another reply, but don’t see it on the web. My brrain MRI is normal, neuro wants me on 10 mg prednisone daily, imuran 2xday, and mestinone. She is treating me for the myasthenia gravis I have (was in remission until GBS hit me 5/05 ). I’m in a quandry, scared taking that medication because of what it did to me before–destroyed bone fusion for laminectomy, necrosis of the hip and cataracts. Kit, Debbie, Cheryl, Victoria, Kelly, you are all telling me that you had and have almost my same vision problem and didn’t take the stuff my neuro prescribes. I don’t know what to do. I’m taking the nasty meds, but don’t have a good mindset about it. Thank you all very much. Kelly, I wish your daughter well and will pray for her. I don’t know how Jerimy manages all his autoimmune diseases. I have 3, that I know of, and that’s too much for me, although pernicious anemia is easy enough to deal with–a B12 shot once a month, MG is a sneaky, chronic one, and GBS is still with me–can’t walk, tinkling hands and legs, shaking hands. I’m not complaing about GBS, because I’ve come a long way in almost 22 mos and having this support groups is a blessing. Don’t know what I’d do without you.