Very Lucky

November 26, 2006 at 1:20 am

[QUOTE=jenni]It took a lot of googling but I finally found a support group!

I was just diagnosed last week and spent 8 days in the hospital. I was just released yesterday. Two and a half days spent in ICU and then rest in a step down unit I am glad to be home. Plus I have a three year old and it was killing me not to see him!

I’m new to all of this. I had Chronic Lyme Disease when I was younger but since I was 15 my levels have tested low and I don’t have any signs or symptoms. The GBS seemed to come out of no where. They are not sure what caused it, but did lots of blood work to find out.

I’m a social worker by day (bartender by night) and my doctor had suggested that anything from cockroaches or mice droppings in my clients homes could have caused this. Do you think thats a possibility? I love my job and want to return to work as soon as I can (not to mention my job will be replacing me in 4.5 weeks if I don’t return!)… But if the trigger could be that what can I do? I can’t risk this all over again.

My other question is how common are relapses? I’m only 23 and I’m totally freaked out by the fact I could have to worry the rest of my life about relapsing…

You are very lucky to have been in the hospital only 8 days!!! Be very thankfull, with this disease I was in the hospital 3 months and most people-longer! Are you sure you had GBS? Don’t worry about a relapse, just take one day at a time. How did the Dr.’s determine you had GSB anyway?? Take care of yourself. Its been 12 years since I’ve had this and still feel fatigue.:) 🙂 God Bless!!