Ken,
You do have family. They are here on this forum. We are with you until we hear from you no more. As long as there is a thread of hope, we won’t give up.
The angels will watch over you. We are here for your life partner too, Frank I believe is his name. We will support both of you in all ways we can.

I hope all on this forum will start a prayer chain.
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Hi Kristin, vent vent and vent…this is the place to do it…and its good for the soul..just wanted to let you know that I got phemonia over the holidays after being told not to be with any one that was ill (right and how is that suppose to happen)and it was like I got hit by a mac truck the feet are still tingling and I havent had that happen for a long time and if you add stress to the mix your going to add fuel to the fire and thats not good its easy to say dont stress out but you well and that is the greatest enemy that people with cidp have the unseen enemy.. so try and find that happy place and try not to worry so much I know that its hard, but hold on and it well get better and tell the stress monster to find someone else to bug Take care and hope you feel better Brenda;)

Hello,
Are you anywhere near Trevose, PA? I know a nurse who works in a vent clinic and perhaps I could put you in touch with her. I just hope I am right that it is a vent clinic, I would not want to get your hopes up of a possible place. The only way I can get in touch with her is through a post office letter. If you want me to try, just click on the name I use (codystanley) and send me a PM or email with your address and phone number.