Hi Tara: I have an excellent neurologist Dr Simon J. Farrow. This doctor diagnosed me with CIDP. I have been taking prednisone since last October, 2008 and have not had any pain since December of 2008. He is slowly weaning me off the prednisone and I don’t know if I will be left with residual numbness in my feet or whether I can ever go outside without a walker.. Right now I walk around fine indoors. I keep getting stronger and my fatigue has vanished. Every other day I walk with my walker to the store and spend 2 or 3 hours walking and shopping without sitting down.
There is an air-conditioned exercise room where I live and on real hot days I have started 10 minutes on the bycycle and 10 minutes on the treadmill.
There is another doctor in Vegas who was recommended on a Neuropathy Forum. His name is Dr. Richard Lee and he is said to know CIDP in and out.
I am going to be 71 soon and I think Dr. Farrow is the best doctor in America.
I was also diagnosed with diabetes a few months before this CIDP. It’s harder to control my sugar with the prednisone but between the exercise and the strict diet my sugar is doing well and that’s very important.
Dr. Farrow said my CIDP is under control and I expect him to reduce the prednisone again next month.
I was not told about relapse or remit, but it may be too soon to tell. Indivduals follow different courses with this disease and I don’t know what will happen in my case.
My whole life seems up in the air and uncertain, but at least I haven’t been given false hopes.
Finding the right neurologist is key in this disease and I wish you the very best.