Update on progress
Marshall saw a specialist in Seattle about 10 weeks ago. Started him on weekly ivig at a higher dose and with specific brands that do not have sugars (I can’t remember the right term) which he has found to cause fewer reactions.
After 5 weeks of treatment we saw only minimal progress. 6 weeks we were discouraged. 7 weeks, the arms were getting stronger. At 8 weeks, we are amazed. His progress is doubling every day. Still not on his feet. Just starting to get some movement in the legs. But, we are hopeful he can come home in a few weeks.
We go back to Seattle to UW on June9th. I will post an update then.