UPdate 7/24/2010

July 24, 2010 at 12:54 pm

Just returned from a 2 hour 25 mile bicycle ride. Whew, I’m pooped! Last night I did 40 minutes on the elliptical machine, upper body and lower body weights. I’ve gained quite a bit of weight (some more muscle mass … yipee and some 100% USDA grade A lard 😮 ). I think the latter comes from sitting so much at work and eating powder sugar donuts. I’m giving up the donuts. I don’t take steroids so I can’t blame the weight on steroids. I turned 54 this last week. Thankful to be 54 and have treatments that work for CIDP.

My neuro during the last visit said PE’s are like “keeping a finger in the dike”. My wife didn’t like hearing that. He said that indicating PE’s may not be the answer for me long term and that anything (injury, infection, illness, … ) could burst the dike. So I’ve been really interested in the Stem Cell discussions. So I’m going to talk with my neuro and the blood center folks about SCT and start the ball rolling so, if the dike bursts, I’m ready.

I’m feeling fairly OK. The burning, tingling and headaches have abated down to a normal level. The fatigue for the most part is under control. I usually have to fight through the fatigue during the first 10-12 minutes of exercise, but then I “get into the zone” and it goes well. My former “lung capacity” has not returned yet though.

I’m planning on skipping a week between PE’s again this cycle (what that means is I’ll have PE’s on the 5th and 7th weeks). Hope it works this time.

God’s richest blessing for you all,