Update 1/28/09

January 28, 2009 at 1:36 pm

My last PE was 1/8 and 1/9. I am scheduled for PEs tomorrow and Friday which will make 3 weeks again. (WooHoo!)

I went on a Caribbean cruise with my family the week of 1/19 and was feeling fatigue in my legs and and arms and even into my shoulders. What I noticed was that the fatigue was worse during my first 10 minutes of my 30 minutes on the elliptical aerobic machine. After 15 minutes I was feeling rather strong again. Also I had slight joint pain and some fatigue in my forearms, elbows and shoulders while lifting weights (curls, lat pull down, and butterfly). After the first set again I felt much better.

By the end of the cruise Saturday I was feeling stronger, but the fatigue and burning and swelling in my feet and ankles didn’t respond as well this round of treatments.

I have gone on a diet (after the cruise) and I think it has resolved the swelling in my abdomen (I’ve lost 10 pounds and my belt is one notch to the good side).

I just spoke with a friend who was a co-worker of mine a few years back. AMAZINGLY he also was diagnosed with CIDP. Gotta Run … will hopefully post more tonight.