Try JHH

Johns Hopkins Hospital in Baltimore is at the cutting edge of Neurology. Their staff is wonderful, and their doctors are on the leading edge of treatments. Baltimore might be a less expensive and easier commute than Rochester. Hopkins will also do all its own tests, and probably require a referral from your doctor. I was treated there successfully and became very good friends with my doctor, who is one of the world’s top researchers on CIDP. According to my doctor, correct diagnosis is a major part of determining treatment, and it is where so many people are ill-served.

I also know that this doctor is at the forefront of working with the GBS-CIDP Foundation to establish Neurological Centers of Excellence, a program that should be rolled out in the very near future. A total of 7 or 8 applications have been received, and that does not include some of the major medical centers who have not yet applied.

So, please consider JHH as an alternative. Your out-of-pocket expenses will depend entirely on your health care. My diagnosis and treatment over time carried a huge price tag, but almost everything was paid for by insurance. Since I live near Baltimore, it was all on an outpatient basis. I hope this helps.