May 20, 2010 at 3:08 pm

Johns Hopkins Hospital in Baltimore is at the cutting edge of Neurology. Their staff is wonderful, and their doctors are on the leading edge of treatments. Baltimore might be a less expensive and easier commute than Rochester. Hopkins will also do all its own tests, and probably require a referral from your doctor. I was treated there successfully and became very good friends with my doctor, who is one of the world’s top researchers on CIDP. According to my doctor, correct diagnosis is a major part of determining treatment, and it is where so many people are ill-served.

I also know that this doctor is at the forefront of working with the GBS-CIDP Foundation to establish Neurological Centers of Excellence, a program that should be rolled out in the very near future. A total of 7 or 8 applications have been received, and that does not include some of the major medical centers who have not yet applied.

So, please consider JHH as an alternative. Your out-of-pocket expenses will depend entirely on your health care. My diagnosis and treatment over time carried a huge price tag, but almost everything was paid for by insurance. Since I live near Baltimore, it was all on an outpatient basis. I hope this helps.