Truth

Anonymous
June 15, 2007 at 9:58 am

Hello Stacey,
I can only speak for myself, I don’t know if this can happen for all. My doctor’s never told me what form of CIDP I had, but since I am the person living with it, I believe I had the slow progressive kind because months would go by before I’d get a little worse.

When a treatment we are getting works, CIDP can be controlled so that it will stop progressing. When it’s controlled, we can heal and regrow myelin. I was being treated with IVIG’s, prednisone and on methotrexate for a year. I stopped progressing and have been off ALL, THAT’S RIGHT, ALL treatments for CIDP for 3 1/2 years now. I have shown no sign of a relapase, I maintain what I have, I remain stable.

The downside, the bad news, though I am no longer progressing, I am left with with alot of residuals. I was severly damaged and for me I may have healed as much as I can. I may always need a wheelchair. If you stop progressing when you are only mildly damaged, you probably have a much better chance of being almost as good as new.