Trembling and fatigue

December 18, 2010 at 8:25 pm

I got diagnosed with CIDP about 1993 and general fatigue has been an everyday occurrence since. I adjust my day pretty much around the fatigue factor, generally better in the AM, not so good in the PM.
Most people I talk to w/CIDP and GBS have fatigue. I can do one crutch/two crutch at home and power wheelchair when I go out.
After about 5 years, I began IVIG ea 6 weeks and one day my left hand started to tremble when I tried to do some simple tasks like type or carry a cup of coffee across the room- my Dr. said it was an ‘intention tremor’ – but no medically proven reason. My best guess is my ‘nerve juice’ is leaking my muscles and certain actions are affected.
I also have what my Dr. calls ‘fasiculations throughout’ these are the little tremors ~ when I make the “OK” sign, I can see them in the web of skin between my thumb and forefinger. Pressing thumb and forefinger together with light pressure, hardly any, but a medium pressure and they leap around a lot, hard pressure and they stop. I think these little fasiculations are the main cause of my fatigue, because my body is always ‘at work’.
My hand does not tremble unless I intend to do something. My friend who has Parkinson’s and I agreed not to ‘do soup’ at the restaurant. I drink soup out of a cup and only while sitting, when I type I place my left thumb at the base of the keyboard to steady my hand, and bought a coffee cup with a screw-on lid.
In other words, I adapted.
If there is a drug that would help, I’m not aware of it. But I’m sure there is something. I’m always wary of drug side-effects, I won’t take corticosteroids for example. My diet is IVIG and alprazolam (3mg/day). I wish you well and hope you find what you need ~ and share it with the rest of us please.