Treatment plan…

September 2, 2010 at 12:50 am

It sounds like at one point that you were at a very low point physically & then the IVIG kicked in sometime in July & you were almost your old self? How often are you getting IVIG? Once a month, every six weeks? Because it could be a simple change in the time between treatments to keep you at your best. There are people who need IVIG once a month, some every 3 weeks, some even every two weeks. Whichever treatment plan it is you need, that is what you should be getting.

BTW consider yourself one of the lucky ones if IVIG works that well for you. I have the progressive form & had 44 IVIG treatments, none of them worked. Try to stay off of the solumedrol though. Long term it will do you more harm than good.