December 2, 2010 at 12:39 am

I can use a walker with just a little help and in and out of a restaurant if it’s no more than 50 feet or so. It is hard though and my balance is terrible. Otherwise, I am dependent on my amigo (power jazzy chair). I made a round trip from Michigan to Peurto and then round trip from Michigan to Florida. That was at beginning of symptoms. I felt a wierd pressure in my neck and head. Have heard from some cidp members that they got worse after flying too. Others said it didn’t seem to bother them. I do need assistance for trips.


November 8, 2008 at 4:04 pm

Thanks for all the replies. I’ve been away for a few days, so couldn’t check what’s going on here.
Anyway, we decided to postpone our trip at the moment. Nevertheless, I’ll be seeing a neurologist this Tuesday, so I’ll probably check out a few things about the vaccines.
Will update.


November 4, 2007 at 2:30 pm

Hello Aimee,
I don’t use a rollator so I can’t offer any suggestions, but I have gone into the city in my wheelchair and got on and off a train without any problems. I remember with the train, a conductor helped me on and off and put me in a place where the wheelchair could go. And a city smart friend of mine was able to push me around and take me places. I don’t walk well enough to just try it with a walker.

If you’re going to be in NYC long enough, you could consider getting on the Long Island Railroad and coming out to Long Island to meet Codystanley. If you’d like to try it, just send me an email so we can talk. [email][/email]