Do you have any movement or feeling in your toes?

Perhaps that is what he is refering to?

Hello,
I was diagnosed with CIDP in 1998 and I still have hardly any movement in my toes, though they do wiggle just a little bit. I also have very little forward movement in my feet. For me, this will probably always be.

I think you should try having the IVIG’s closer together for a long enough time to find out if that helps you. I did well with one day every two weeks.

When my CIDP hit in March of 2002, my feet went very rapidly (as did everything else.) But once my CIDP was arrested in 2003 I got back most of the feeling in my body, except total feeling below the knees, & I still have some numbness in my hands. But my feet are by far the worst, haven’t moved my toes since April of 2002; don’t have any feeling in them either. But I still walk, with AOS, & don’t think about them anymore. But I know that is the reason I have virtually no balance.
Pam