Do you mean to say that after 13 years they never have tried IVIG? What have they given you?
Are you able to continue to work with these bizarre sensory symptoms? The anxiety seems to arise from not knowing what to expect from one day to the next.
We are trying to get more IVIG tretment here in Canada but the doctors are waffling about it. It is now one month since the fisrt loading dose and he is needing a maintenance dose.