to answer your question

October 21, 2007 at 10:52 pm

Welcome to our family. Your family may want to read some of the posts to know what you are going through and how much better you are than some on this site.
TO answer your question – the first time I got GBS in 86 I had lots of pain and I recovered faster. I found that when I stopped my intake of vitamin C which was around 15-20 grams per day, the pain intensified – like I was hit by a truck. I only did that one day to get a 24 hour urine collection. I had a wholistic doctor who kept me out of the hospital. I found that adrenal extract along with the vitamin C helped turned the disease/syndrome around.
The second time I got GSB which was a year ago this month, I had much less pain but more paralysis. I stayed at home and used my 35 year knowledge of supplements to fight it off. I took MSM when my breathing got bad and that helped. I chewed my food 50 times and drank carbonated drinks to push the food down. I lived on the floor alone in the house. It was like survivor school and I was developing the curriculum! It took me four months to just stand for a second. So for your hypothesis – this time less pain and much longer recovery.
Perhaps your joining us will be another part to the GBS puzzle. Maybe you will be able to help us figure out this crazy syndrome. I do know that huge amounts of vitamin C slowed the progression down so I got it gradually. Since I had it twenty years ago, I knew what was coming. I just didn’t know how bad I would get it this time. Since vitamin C slows it down and keeps the pain away, perhaps that is a clue as to what causes GBS. YOu might want to try it for your pain. Use the bowel tolerance test……take one or two an hour until you get bowel intolerance – then cut back by a gram or two for the next day. Hey, what can it hurt?? Linus Pauling one two Nobel Prizes – Peace and Chemistry -and he swore by it!
WHat caused your GBS? YOu will be amazed at how many different ways you can get it – and none of them make sense. Mine was stress both times – even though it is not listed in the literature.