Thoughts for the daughter…, the family….

November 22, 2006 at 8:42 pm

Hi Larae,

I was ten years old when I was stricken with GBS (and a foster child, too), so I can relate (as others can) on what her fears and anxieties might be. In 1971 little was known about GBS (my first diagnosis was polio) and today there is this wonder drug IVIG and other meds, so your daughter stands a good chance for a full recovery even if it’s a little long and strenuous. My residual was that I have drop foot and have to live with wearing AFO’s. But, when I put them one, few even notice or know, so I’m “Superman” at that point, LOL. I mention this to let you know that although we all hope for a full recovery, a bit of reality is that there might (MIGHT) be some residual effects left behind from the illness and both your daughter and the family should just be prepared for that. Others can talk about their residual(s) effects and I’ll just leave it at that for the time being.

My thoughts and prayers will be with you and your daughter and the family during this period and just know that she’s loved here unconditionally and if we don’t have the answers immediately, there are so many of us that almost [I]too[/I] many of us will be working really hard to find an answer for you, LOL.

Take the PT/OT carefully but diligently as it will help strengthen her, too.


From a Liason-in-training,