thnks for the advice

August 25, 2009 at 3:58 pm

Hello Kelly,

We did think it strange I should have these 2 apparently unrelated conditions and on checking symptoms for MF I do find some things fit, such as the tingling in my face and upper arms which started a few days ago. I also have vision problems and of course the aggravated weakness in my muscles and poor balance. It fits. It appears the IVIG is the way to go – the treatment is known here.
I researched a bit on the Prednisone which was intended for the Bell,s and it appears that there is no benefit on the whole from taking it – tests show no improvement and even some risk of relapse.
I have cancelled my doctor’s appointment for tomorrow and will stop taking the steroids until we have an idea of where to go from here. We certainly need to find someone in South Africa with experience in this.
It appears that there is something to be said in favour of this as my symptoms are still mild when compared to others.

Thanks for the advice and info.

Will keep you guys posted.

Will include Emily in our prayers for full remission!



P.S. I better get well – these days I am a real push-over!