Thinking I might up the dosage again!

August 3, 2006 at 9:57 am

:confused: Well, its been a week now and the pain and tingling is pretty intense. Still at 30 but think I will go back up to 60. I am having no luck in getting a neuro appt. either. Just a little background…I was diagnosed in 1979 at 18, spent 4months in ICU, put in an iron lung for 6 weeks, as my mother did not want me to have a trach scar and Doc thought it would be “therapeutic”. (Made me severely claustrophobic) Everything paralyzed, couldn’t talk couldn’t eat couldn’t potty couldn’t blink couldn’t move, heart stopped twice (watched myself flat line), pretty bad. At 12 weeks started to get some feeling back, but feeling was intense, what I called, Bone Pain. Gave me Darvocet, made me relapse and stop breathing and heart stopped again. Went to no pain meds, lost mind. Only relief was in Hubbard tank. But at 18, I was in great shape, pre-GBS, so I was determined to get it back. 2 years of PT, OT and ST. Felt like I could take on the world and I did, married, 2 BA’s, 1 MA. But for the next 25 years, I spent a lot of time telling doctors who insisted that everytime something was wrong it was related to GBS, that infertility, fatigue, weight gain, phantom foot pain and depression were not related. Even had myself convinced….Well, I did the denial and procrastination thing very well. But last year, I started this weight loss and workout program, needed to lose 60 lbs. Sugar was up, did what I thought was a good thing, Weight Watchers and walking 3-5 miles a day with hands weights, first 2.5 then 5 lb weights. Lost 60 lbs. but started having very severe aches in my arms with hot poker shooting pains from shoulder to fingers, feet hurt too, but they always did so I didn’t think much of it, just got in the hot tub after each workout. Water is still my savior. Here is the rub, went to PC doc after I intellectualized all the pain and self diagnosed (as usual) and explained that I thought it could be a)post gbs b) pinched nerves (bad neck) or c)carpal tunnel. Actually I think it is a combination of all 3. What I need to clear up is the Post GBS part so I can tell what needs to be done to fix the neck and carpal tunnel. Doc prescribed Cymbalta, after NCV/EMG ( Does everyone hate those as much as me? I think they are barbaric and don’t you think that in 25 years they would have come up with a new way to get that info. I think the machine they used was exactly the same kind they used in 1979) Well surprise, surprise, very bad numbers. Nerve conduction is way off. Okay so here’s the rub, Why all of sudden did this get worse! Why isn’t it getting better with rest? And how do I fix it besides Drugs? Help????? Nat:confused: :confused: :confused: