Therapy in the hospital

Hi Dana,

I am so happy to hear that you remain active despite your fatigue. That is the residual I have. It does get frustrating. One thing I have learned is that exercise is extremely important to boost my energy for the day. Exercise has to be a priority for the rest of my life. I hope you find the balance for your daily living. I also feel it is extremely important to listen to your body and act accordingly.
I was diagnosed in 2001 with a more mild case. I was not in the CCU and not on a ventilator, and I was never completely paralyzed. It did take me about a year to get back to functioning the way I wanted to.

I have a question for you…
I am currently finishing my degree in occupational therapy- GBS inspired a career change. Since I did not spend time in the ICU or CCU with GBS, I am seeking information about what type of therapy you received from the therapists in CCU when you had very limited mobility and sensation? Did the therapists work with you on activities other than passive range of motion and exercises?
I am currently seeing a patient with GBS in ICU who is paralyzed and on a ventilator. He has no verbal communication. He does move his head and elevate his shoulders.
If you have any information, I would love to hear from you.
I wish you the best with your pregnancy!!
Thank you
-Juli