Maureen, did you go in yet for your SS review? I have found with my daughter it is much better if you go in, if possible, rather than phone or mail. It is my understanding that once someone is over 55 it is less likely that SSI will drop you. My daughter has very apparent physical disabilities from CIDP. Initially it was quite a job to get the SSI approved, but once we went in to the office it was much easier (except for filling out the same paperwork 2 x, I did it my daughter still could not write).
I sincerely hope if you have not had the appointment yet that it will be successful.