The Saga Continues………

December 27, 2009 at 5:05 pm

Hi everyone,
I want to thank you for sharing all this information with
me! I really appreciate everything you write.

I have a question about Vitamin D that Elmo mentioned.
I think it is an important vitamin for us to take because
it does effect muscle and joints. Does anyone know
what dosage would be correct? I already take Calcium
that has 600 mg of Vitamin D in it. I am just not sure
what the recommended dosage is. Do any of you take
Vitamin D? When my Rheumatologist tested me, it came
back a little below normal.

What about other vitamins? Are any of them real
helpful for us? There are so many out there. It’s
a billion $ industry in this country alone! I do know
from my research that some of them can do more
harm than good. They too can have their side effects.

Thanks again for your feedback! Let’s have a better
New Year!!!

Sandila :confused:

the saga continues

August 27, 2009 at 11:05 am

Since my symptoms are getting worse – face tingling, tongue numb, legs now very weak, arms and hands numb and tingling, loss of co-ordination etc. – I decided to visit our local GP for advice and treatment for this cold which is making life unbearable.
I told her the whole story and our suspicions regarding the Bell’s being MF and even possible DICP.
She wasn’t told why I had made appointment and I was surprised to find out that she knew of all these conditions – she had also previously treated patients with GBS.
After doing an examination and tests she said that it was possibly not GBS at all as I did not exhibit all the classic symptoms – she also ruled out MF and CIDP and that I never had Bell’s Palsy either.
All very puzzling as the MRI brain scan showed no problems at all.
The upshot of all this is that I will be seeing a neurologist in Johannesurg soon to find out what is wrong with me.
So we will keep praying for good news.