the bittersweet vindication that it is not all in my head…

Thanks again for all of the help and feedback you have given me in this strange time.

Well, it is not all in my head. The EMG came back normal, but the somatosensory evoked potentials did not. I have only been told, by the secretary, that I have a new appointment for the end of January because the SEP showed abnormalities in my legs and eyes.

I have no idea what to make of this. No idea. That is CNS and PNS. I wonder if I should even ponder it at this point considering I am clueless about the results and what they could mean.

So I imagine you all do not have [I]eye [/I]problems because that is CNS? I still think what I have is autoimmune because of the presentation. Would MS show abnormalities in the legs, i.e. coming from the legs the signal is slower because of problems in the CNS? OR would SEP problems in the legs mean actually in the PNS in the legs? I can’t begin to contemplate that I have a disease in both. I wonder if it is progressive MS that more rarely shows on the MRI. Gee whiz…

I am in the US now and will try to see a neuro here with these results at least to get a consultation and some idea of what is going on and what i need to do next. Then I will see a neuro back in Denmark late January. Can’t stand the waiting…

More unanswered questions but at least closer to solving this…thanks again for your help and any ideas on the SEP reading are welcome.