thats right!

I agree! If we speak up, even if it is a symptom that is currently not typical for GBS, then that information is documented in our charts. Hopefully, down the road, the docs will put 2 and 2 together and realize that there is more to this disease than they realize. Doctors learn by studying cases-that would be us! And if we don’t point out the “little things”, then they may never know. Look at the stuff that comes out in here! A lot of, wow-me-too’s.