Thanks to Everyone For Replys
Thank you to everyone for your replys and stories. It helps. Gene, I think you were the one who said something about my normal EMG. The tech who did it in the hospital said that it could have been just too soon. She said that the EMG is behind what the nerves are actually doing. The implication to me was that if they did another EMG now that it would not be good. I don’t know though. I will talk to my new neurologist Monday. Thanks for the additional Neurontin info. My mother-in-law knows someone personally who had GBS and is actually a member here. She had the booklet that was written with all of the info. I read that last night. Frankly I am going to take it to my doctor. He has been involved in the treatment of a couple of patients, but he practially brags about the few that he has treated and they are all different, drastically different.
Anyway, I didn’t want to go on and on- after the narcotic and neurontin and pain I don’t have the energy to go on and on. I have the option to work from home some, but I am afraid that I might not be clear headed enough. I am very tired, etc. The problem is that we really need the money and I have work to get done. I can tie up a few things and then I may just have to let work go. The problem with that is that I am “as needed” or PRN if you know that term and I am afraid that when I finally am better they aren’t going to need me anymore. I have no sick time, etc. I know that these are stresses that everyone has faced, but I am not protected by any disability, etc. We have great family amd friend support. We even have family financial support if we really need it. I am humiliated at the needing it, but I have an almost 2 year old so I will do what I have to do. I am having to send her to the sitter the 2 days that she was going and even a 3rd day just because I can’t take care of her and then her grandmother is keeping her the other days. Okay, now I am just blathering… sorry. I am just so stressed about what to do about working, finances, etc. I know that I have to let it go and rest, but it is so not my nature and it is just sitting there waiting to get done, etc. AAAAAAUUUUUUGGGGHHHHHH!!!!! And I HURRRRRTTTT!!!! It isn’t as bad as it was…. it isn’t. I shouldn’t even complain compared to yesterday morning, but darn after over a month of this I am exhausted. I don’t know how some of you have already done 6 months and more. I know that I will get through it. I am just at that AAAAAAAAAAAAAUUUUUUUUUUUUGGGGGGGHHHHHHHH!!! point right now. I guess that is normal. Heck, who cares what is normal, right? Nothing is normal about what is going on here. GBS or not. Okay, starting to sound depressed. I am going to go run around the block and shake it off… oh, that’s right… I can’t do that… LOL… just kidding… I am going to be okay… thanks for letting me melt down. My arm is shaking like a leaf from all of this typing. I am going to go sleep now. Thanks for the support.
1/5/07 Probable GBS