Thanks to all…

November 16, 2008 at 3:37 pm

Dear GBS/CIDP Friends:

I am sorry it has taken me this long to get back with you, but thanks for the birthday wishes and words of encouragement. This is a large community and I still consider myself a part of it even though I do not post as often as I once did. I had a great day, topped off with a nice dinner. Rosemary took me to OUTBACK’s.:)

Regards to all.


Thanks to all

August 20, 2008 at 1:47 pm

Thanks for the quick and informative replies. After, my posting I did see the other one noted above about TX case. I appreciate the feedback and plan. I too am concerned about the Menactra and Gardasil vaccines in the future as I also have children in elementary school. It gives me the ‘willies’ when I’m up late at night and hear the phrase “Guillain Barre Syndrome” coming from my TV, almost like they are talking right to me.

I think we will go the route of a medical request for denial. In addition to my uncle, my grandfather died from “pernicious anemia” which has symptoms eerily like GBS and my brother has IgA nephropathy – too much protein in the urine. What’s the test for GBS, but a check for protein in the CSF.

Thanks again……………….Mike

Thanks to all

August 14, 2008 at 9:19 pm

All of you have been so kind with your responses. Norb, you and your wife make me want to jump in my 2001 Taurus so loaded down with cat food for the many ferals around town and around the local university that I feed and drive all the way to Fort Collins to meet you. I often lament about how far apart I am from the people with whom I feel such immediate attachment. May we all join in one circle of the spirit, chant a few magic words, and. . .oh, well, maybe I’m the one who needs all the neurontin and a good night’s sleep.


Thanks to all

July 9, 2008 at 2:13 pm

Thanks for all the info. I have had only one of the IVG treatments and last visit Dr put me on Lyrica because of pain in left side . No signifcant improvment however. I do cough alot ,dont know why.
I am out of fema trailer now,thank the LORD for that. I have a hard time adjusting to not being able to do all that I want to. I was hoping to have garden and plat flowers around new home but just cant manage to do it. I cant even clean house,had to hire someone. i still can wash dishes and cook however. Any suggestions or info woud be appreciated.

Thanks to all

April 20, 2007 at 8:32 am

thank you to everyone for the wonderful welcoming. I really look forward to getting to know the regulars and meeting new friends. Everyone have a tremendous day today.


Thanks TO all!!!!!!!!

February 19, 2007 at 11:44 am

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Hello Suzanne,

I understand where you are coming from so don’t worry, I just wanted to make myself clear that it was not that I don’t like to be around people its just that I don’t have the energy. I was always very social. I understand that you want to help, so THANK YOU!

Your correct that I we have to accept the fact that we have limitations and that is something I have to work on. I know that when I first realize that I had to go on disability because of GBS onset, I kept saying to myself ” BUT” I’m not disabled. I guess if I can’t accept it myself how can I expect others to except it. I will have to work on that!

You are very correct that I’m very cautious about whom I tell about my past with GBS cause I have been hurt by peoples reactions. I have thought about telling my boss But I get scared. I will give it much thought and try to over come my fear of their reaction!!!

Thanks to all………….

Thanks To all

November 7, 2006 at 1:36 am

I just wanted to say [SIZE=4]Thanks!!!!!!! [/SIZE][SIZE=2]You all really helped. 🙂 [/SIZE]

Thanks to all!`

October 18, 2006 at 7:39 pm

My thanks to all for the insite and sugestions. The most noticible side effect I have experienced for the prednisone thus far has been a bloated stomach and a moon face. There has been some depression but thankfully it has been mild.