thanks Sara

November 6, 2008 at 4:42 am

Hi Sara,

I’m glad that you finally got a diagnosis. Can I ask what a LLMD is? When I first got the symptoms (CIDP), I was convinced that it was Lyme. I’m (was) a landscaper, and an avid outdoors woman. But, of course, everything was “in my head” because I appeared healthy. It took 8 months to get diagnosed, and by then I was in a wheelchair. I had all the regular Lyme test several times. And the whole tick borne disease scan. All negative. I bought Stephen Buhner’s Healing Lyme book. It’s full of all the co-infections, and ways to treat naturally. I still wonder if it’s what I have, because the docs keep saying that I am not typical and have yet to be told what variant of CIDP I have, and now they are telling me there is Central Nervous System involvement. Fortunately, the protocol that I plan on following after my Ivig treatments is pretty much one in the same for Lyme and Cidp. Thanks again for sharing your experience. Get healthy!!