Thanks Debs for the info

June 4, 2010 at 10:42 am

Hi there in New Zealand,

It is really helpful to us to get this info on Sensory CIDP. The neuros in our city(Ottawa ON) do not recognize it. We had to go to Ney York City for diagnosis and first round of IVIG.

We are heading to Toronto next week to see another Neuro.She is an expert in CIDP in Canada so we hope she will recognize this variant.

It has now been almost 8 weeks since his first IVIG treatment- Our GP has given my husband Lyrica (he is now tking 150mg twice a day).

How did you get your diagnosis of sensory CIDP.? Since it does not show on EMG or NCV tests many neuros say it is not CIDP…

We would appreciate your insight.