thanks also

December 31, 2009 at 11:07 pm

Thanks also for raising this. The holiday season is tough because there is so much to do and so much that we want to do. Also, I kind of accept that people do not understand when you say things over the phone, but being with family and friends is a different matter. I started the day in tears because I just wanted my twin to understand at least something about this neurological fight and he does not–he does not understand that it is a struggle to walk, that I cannot do all the things that I used to be able to do and have to reorganize my life to be able to do what I can do–to do things and take breaks, nor the tremendous impact this has had on my self and belief in self since like many of us I have defined myself by what I can do. We walked so similar a path in life for so long that it is really hard to know that he does and cannot understand how this path has changed for me. I am coming to terms with trying to live differently and trying to focus on what I can do rather than what I cannot do, but I have not found a way to not feel very alone in this journey.

My tiny suggestion for you is to make tomorrow a stay home and cuddle day with your hubby. It will be good for you both.
WithHope for rest.