Thank you so much
I can’t thank everyone enough for all of your heartfelt advice. Thank God I have this group of people to turn to. Our lives, all in some way, allows an understanding that others couldn’t begin to know. Every word that each of you said will be taken into consideration before any decision making is done. Sooo much to think about! May God Bless each and every one of you for taking the time to repond.
thank you so much
i appreciate all the birthday wishes… today, the 7th, is my actual birthday:o
yes, it’s a wonderful treat to be able to be home, not just for my b’day, but mostly to be here with the dogs… and of course it’s great to see friends– but i have my priorities. you see, i’m dyslexic when it comes to the word god, i read it dog 😉
anyway. i continue to get stronger from the last go around. my hair seems to finally be thinning… not on my legs, i might add– i get a five o’clock shadow 24 hours after shaving… i wonder when those hair follicles will get effected…:rolleyes:
and… i cannot wait for the likelihood that i will go into menopause– yipee! i really don’t need the equipment… i look at it as an added benefit, along with the likely weight loss the evil prednisone has caused…
you might wonder about all this flying we do. my dad was a pilot in the air force and his pilot buddy is a family friend. well he left the service long ago and went to work with united. essentially he has free passes for friends to fly space available– it’s been wonderful because we not only fly 1st class and take a direct flight, it costs us only $44… it is a very cool thing.
thanks again for the b’day wishes…
alice
p.s. i don’t know which cake looks better– may i have a sliver of both?
Thank-you so much!
Thank-you so much for sharing this information. Very detailed on the GBS and CIDP. Hmm! Really interesting how I had spine surgery and the treatments they are doing for CIDP with the spine. Thanks!
Thank You So Much
Adina,
Thank you for sharing your poem. Reading, and re-reading it makes me remember how important each day is….
Thank you so much
Thank you so much for this information, Old Bat! I’m making a copy for both my PP and my neurologist. I’m so happy that this was written, it seems like it describes me to a T. And thank you for telling me about the “real” drugs VS the generics. I didn’t know all that, I thought they were the same, but the generics were just cheaper. I’ ve never had any side effects with the generics or any problems, but I’ll be more aware, now. Thanks again.
Thank you so much
This is my first time posting to the forums, though I’ve been lurking and reading since I was released from the hospital in November of 06. I was diagnosed with a mild case of GBS – no paralysis, just difficulty moving, loss of reflexes in my legs and LOTS of tingling and numbness. What no one told me at the time was that even a mild case of GBS stays with you. I still have tingly days, though fewer and fewer. And I still tire easily. And ache. And of course, some nerve damage.
And then a week ago I got a cold, my first in over a year. I was able to control the fear until this morning when I started tingling, more tingling than I’ve felt in a long time. I cried. I begged god not to let this happen again. And then I logged on to the forum. Reading that sometimes other people feel their residuals when tired or under stress, and that so many others are scared or anxious, made me feel so much better. If for no other reason than to know that I’m not alone.
I have an appointment this afternoon with my neurologist. And I’m still nervous, no point pretending that I’m not, but I’m not going to waste anymore time fearing that it might come back. If it does, it does, there is nothing I can do to stop it. At least I’m going to do my best to push that fear away every time I feel it.
Thank you.
Thank you so much!
Dear All,
My wife and I are very grateful for the help and kindness you have given us. She is making progress; however, she is under a lot of stress right now as she is trying to make arrangements for next year at the university where she teaches. I don’t think she is well enough to cope with the stress of returning there. Both she and I are convinced that the hostility she daily experienced from her department head likely lead to GBS. Even the thought facing that hostility will cause the residuals to get out of hand. A difficult time!
Thanks, Jim, for the name of the doctor at UAB who may be of medical help to her. Thanks also to information others of you have given about medicines that may be of help. Thanks to all of you for caring.
Don
Thank you so much
That is such a relief to hear this, even though the news is not good. It’s not much of a forecast for the future but the not knowing is so much worse, I remember the onset of GBS just like it was yesterday and the feeling of helplessness, and 20 yrs ago they knew less than they know now, which is still not alot. i am off to the neurologist on the 16th Dec and will take this with me and let you all know how I got on.
When I was admitted to hospital they asked me if I had been in contact with pesticides or herbicides and as I was a gardener at that stage of my life I answered yes, well nothing was ever said again and I quickly got worse and that became the last thing on my mind. Has there been a connection with sprays and GBS at all?
Once again thank you so much for your support, now I have to wipe the tears off the keyboard before the computer short circuits.
Mike